Approximately 300,000 children and youth ages 14 and younger have been diagnosed with epilepsy, and another 50,000 will be diagnosed this year, according to the Epilepsy Foundation. The goal of eliminating seizures through medications or other treatments while preventing side effects is achievable for most children and youth, but it requires an organized system of care uniformity in the provision of services and support.
Parents of children diagnosed with epilepsy have the daunting responsibility of helping their child maintain a healthy lifestyle and ensuring he or she has regular medical care. To help parents with this endeavor, the National Center for Project Access and the Epilepsy Foundation have released a new toolkit for parents of children newly diagnosed with epilepsy.
The free toolkit, developed by the National Center for Project Access at the national Epilepsy Foundation through Project Access, is available at www.epilepsyandmychild.com. It is designed to be a resource guide and information referral source. It includes forms to help organize medical and education information, take notes, and facilitate communication between all parties involved in the child’s care.
Parents are encouraged to take the toolkit with them during medical appointments, emergency room visits, and other appointments related to their child’s epilepsy.
The toolkit covers treatments, management plans, and seizure recognition tips as well as information on how epilepsy affects family life and what parents can do to keep their child healthy. For more information, visit the National Center for Project Access at www.epilepsyandmychild.com.