New iPhone app helps epileptics monior seizures, treatment

posted on:
September 15, 2010


People living with epilepsy can now keep a diary of their seizures on their iPhone, thanks to the new “My Epilepsy Diary” iPhone app. The app is made available in part by the Epilepsy Therapy Project Clinical Organizer, an integrated suite of consumer health tools and information that offers the app free on It can now also be found on the iPhone through the App Store by searching “epilepsy.”

My Epilepsy Diary is a state-of-the-art, comprehensive data-gathering and reporting tool designed to improve epilepsy care. It makes it easier for families to track events and manage epilepsy and treatments with their healthcare team.

The app allows users to record seizures, side effects or other personal events related to their condition, filling in details quickly using many common situations the diary provides. It also helps tracks medications and dosages, even for non-epilepsy medications and vitamins. The application can also be set up to e-mail or text reminders to take medications.

By utilizing the diary’s personal history module, users can build a much more detailed profile that includes non-epilepsy-specific details of patients’ life and health, including familial patterns, which may impact treatment options and effectiveness. The app also benefits physicians, nurses and other healthcare professionals by providing real-time and relevant data that can clarify diagnoses and improve patient treatment.

“My Epilepsy Diary provides an optimal communications platform for an interactive and effective relationship between people with epilepsy and health professionals,” said Patricia Shafer, RN, MN, Epilepsy Clinical Nurse Specialist at the Comprehensive Epilepsy Center, Beth Israel Deaconess Medical Center in Boston and Resource Specialist with  “It helps patients to communicate clearly and openly with healthcare professionals — even if they are overwhelmed with their epilepsy and the way it affects their day-to-day life.” 

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